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By Staff Reporters
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Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.
Since its creation in 2008, Rare Disease Day has played a critical part in building an international rare disease community that is multi-disease, global, and diverse– but united in purpose.
Rare Disease Day is observed every year on 28 February (or 29 in leap years)—the rarest day of the year. It was set up and is coordinated by EURORDIS and 65+ national alliance patient organizational partners. Rare Disease Day provides an energy and focal point that enables rare diseases advocacy work to progress on the local, national and international levels.
LINK: https://www.rarediseaseday.org/#
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Filed under: Breaking News, Health Economics, Health Insurance, LifeStyle, Risk Management | Tagged: disease, EURODIS, rare disease, rare disease community, Rare Disease Day, rare diseases |
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