NEW REPORT HIGHLIGHTS DELAYED DIAGNOSIS AND CAREGIVER BURDEN IN LEWY BODY DEMENTIAS

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By the Lewy Body Dementia Association http://www.lbda.org/

Nearly 80% of people with Lewy body dementias (LBD) received a diagnosis for a different cognitive, movement or psychiatric disorder before ultimately learning they had LBD, according to the Lewy Body Dementia Association’s Caregiver Burden in Lewy Body Dementias, released recently.

This new report reveals people with LBD and their caregivers face barriers to obtaining an early LBD diagnosis. Caregivers rate specialists and general practitioners as inadequate in discussing disease progression. Additionally, caregivers experience moderate to severe emotional burden, and most experience a sense of isolation because so few people know about LBD.

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NEW REPORT HIGHLIGHTS DELAYED DIAGNOSIS AND CAREGIVER BURDEN IN LEWY BODY DEMENTIAS

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2 Responses

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    A new survey of state laws around dementia training reveals a patchwork of requirements and standards across settings, professional licensure and personnel.

    http://healthjournalism.org/blog/2015/08/dementia-training-standards-vary-widely-throughout-u-s/

    It found that existing laws and training are not keeping up with the growing needs of people who are cognitively impaired.

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